Stroke Odysseys Replicating the Model:
Overview of Integrated Evaluation Plan

Phase 1: Intervention Effectiveness, User Experience & Health Economics Modelling

Aims:

  • To assess the effectiveness of participatory arts-based interventions on psychological wellbeing and quality of life in stroke survivors and carers;
  • To assess the user experience of participatory arts-based interventions; and,
  • To develop the model for the economic evaluation to be undertaken in Phase 3 of the project (application of the intervention in other settings).

Effectiveness and User experience

Evaluation of Outcomes and User Experience of intervention in clinical setting

Validated outcome measures: comparison of scores on measures taken at baseline, mid-intervention, end of intervention, 1-month and 3-month follow-up. Stroke survivor outcomes: anxiety, depression, self-esteem, quality of life, and mastery. Carer outcomes: anxiety, depression, quality of life. Group level analysis is supplemented with individual change statistics to assess reliable and clinically significant change.

Idiographic targets: stroke survivors in the intervention group will identify personally meaningful targets to achieve from the intervention. These are measured weekly. Analysis assesses progress against targets over the intervention.  
Focus groups: to understand potential process variables responsible for change and perceptions of the accessibility and user experience of intervention. Participants – stroke survivors and carers (intervention group only)

Questions addressed

  • Does an arts-based intervention improve outcomes for stroke survivors relative to comparison groups? Are gains maintained? Are improvements seen in carers?
  • How do stroke survivors and carers understand any changes made following intervention? What do they say about the accessibility and user experience of the intervention?
  • Are the two intervention formats comparable in delivering positive outcomes for stroke survivors and carers? Are they equally tolerated?

Phase 2: Communicating the Intervention Model and Phase 1 Findings

Aim:

To disseminate the intervention model and the findings of Phase 1 to commissioners, stakeholders and other interested parties.

Methods of dissemination

(1) Dedicated programme website:
Throughout the project, this website will host videos of creative research workshops and participatory interventions and the findings from Phase 1.

(2) Stakeholder conference:
A combination of performance, oral research presentations and printed literature will communicate the nature of the intervention and its outcomes to commissioners, GPs, community support organisations, patients, carers and academics.

Effectiveness and User experience of intervention in community settings

Similar to Phase 1, validated outcome measures of anxiety, depression, self-esteem, quality of life and mastery will be completed by stroke survivors who participate in the arts-based intervention.

Measures will be taken at baseline, mid-intervention, end of intervention, 1-month and 3-month follow-up. Scores will be compared with those of stroke survivors from a no-intervention comparison group. Carers will also be asked to completed measures of their own anxiety, depression, and quality of life and these will be compared to carers of stroke survivors in the no intervention group. Group level analysis will be supplemented with individual change statistics to assess reliable and clinically significant change.

Questions Addressed

  • Do arts-based interventions improve outcomes for stroke survivors relative to a comparison group?
  • Are gains maintained? Are improvements seen in carers?